Thursday, October 9, 2008

IVIG

Cohen had his first IVIG appt on Tuesday. He did great!

That morning, we brought both Jenna and Cohen to the hem's office. It was Jenna's first visit. They drew something like twelve vials worth of blood for testing. They poked her three times. She was not happy.

Cohen had to have the IV in his foot. They tried two other places and they were a no go. He was not happy either. They took him to another room down the hall and I could hear him screaming as I was holding Jenna down with the help of three nurses and she was screaming.


So I was not happy either.  Haha.



Jenna's CBC looked good. Awesome.  So now we wait and see what all of those test results say.

Cohen did really well yesterday. We had a nurse yesterday. We decided not to utilize all of the nursing hours we have available so for now, we have three days a week all to ourselves and it's working out great.  Last night didn't go as well.  He woke up inconsolable. I've heard from other parents that it's usually the second day after infusion that they get bad, if they get bad at all. Right now, he's sleeping. Earlier, he was stumbling around a bit. I was told he could get bad headaches and flu-like symptoms. I wonder what he's feeling. I wish I could read his mind.

I hope this works for him. I hope it helps him feel better and relieves the constant pain he lives with. I found myself getting all excited about it, and now... well, it's a lot of watching and waiting.

Three munchkins loaded up and ready to go

Some people have to go to the hospital for their IVIG.
We get to go to the hematologist's. Very comfy.

Keeping Hannah occupied.


Resting on Daddy.
Notice who's sleeping.

We go back in four weeks for round two.

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