Is it Feb already? Wow.
Time has been flying by. I hope to keep writing but it's been hard lately. This is really the only journal I have of what goes on around here, so it has been nice to go back and check dates, look at old pics, etc. To see the pics with the comments is great - kinda like scrapbooking, except that takes time I absolutely do not have now.
We are all doing well. We caught this cold/flu thing, but I think it's flushing itself out of our house. Finally. Craig went to Miami for work for three days and I've been working the night shift at home. Ha.
Cohen has been doing the head movement/vomiting thing still, though it seems to be less often now. He has lost weight. Now he is going through some testing. Two weeks ago, it was MRI with sedation (MRI looks fantastic, by the way!)
Today, we go back to the hosp. to take out a pH probe. Cohen was not a happy camper, waking up from anesthesia yesterday with this tube up his nose and down his throat. The nurse passed him to me. Keep his hands away from his nose, she said, because nothing was taped yet - first, they needed to x-ray it and see if it was positioned correctly. NOT A GOOD IDEA!!! I haven't even mentioned that he was heaving after every breath, which made the whole maneuver that much harder. I managed to secure his hands, but within a minute of me holding him in my lap, he managed to rub his nose on my arm and work the tube out.
I was so upset. I told the nurse she should never have passed him off to me like that without someone sticking around to help. A repeat? No way. It just wasn't going to happen. I was done. We were done.
Ah, but once I vented, I was okay. Relatively. And the nurse told me she understood... maybe she was just trying to be nice, I don't know, but the point is, Cohen had to go through the whole thing all over again. Awake.
And mad. Very, very mad.
But, after all is said and done (and with a few wrap thingies on his arms to keep his face out of reach) we actually MADE IT THROUGH THE NIGHT!
So today is going to be a great day! No pH probe in about, let's see... two and a half hours. Yes!
The countdown begins...
