Cohen is back in the hospital again.
He had an abscess in his chest wall that needed to be removed, so they rushed him into surgery this morning after a grueling 14 HOURS in the ER yesterday. Man, I love that place...
He is doing well, but we have to pack the abscess sight with stuff to keep it dry and clean for a few days - an open wound, not pretty! Craig says with this new scar and his G-Tube scar, he'll look like a gunshot victim some day and have quite the story to tell. So not funny?! Have to find the humor somewhere...
Not sure what in the heck is going on. Looking for answers but still not getting any. So frustrating. They deal with this all the time, they say. Well, not us, I want to scream!!! Too much, too fast in the past 8 months...
His lymph node was swollen so they biopsied it and sent it out to see if anything strange is going on. What wouldn't be strange at this point?
For the past few days, he's been increasingly fussy, crying a lot, went ballistic if you tried to grab him under the arms to pick him up, or, well, tried to touch him anywhere for that matter - this usually got worse when his new nerve-pain medicine would start to wear off before his next dose. He barely slept, we barely slept and I worried a lot. Faith, I tell myself. Gotta have it at times like these, but it's hard.
Then, we noticed what looked like a jumbo-sized marble sticking out from his chest wall yesterday morning. Went to the doc - she was puzzled and called ahead to ER; she didn't mess around. She even went so far as to say: "mom, you've been right about this kiddo each time he's had a problem and you need to know that your instincts are right on." Wow, a doctor that compliments the worried parent. Novel concept!
The nurse in the ER wasn't so encouraging, however. Had to tell her to back down and quit being rude after she got snippety with me. My son was breaking into hives and screaming his head off. Hello?! Something's not right. She tried to tell me I needed to listen to her - didn't even give me a chance to say anything - and I told her I wanted a new nurse. She says sorry, we're having a rough night and I said but so are we.
!!!
Nasty nurse turned nice nurse and we all had happy, fuzzy feelings. Not really, but ya know ;) Didn't have to tell her again. Wish it worked that well with children - HA! Turns out he was having quite the reaction to the IV antibiotics. Sometimes parents are right. Crazy thought.
Anyways, he can probably come home in a few days, but here we go again. I feel like a wrestler in a ring, tired but fighting. DING, DING, DING. Round number...well...lost count :(
Wish us luck and prayers always appreciated! :) Hope you are happy and well...
2 comments:
Oh honey. I'm so sorry that you all are going through this! You have been through so much and yet you still come out swingin for the next round, I admire that in you more than I could tell you. All I know is that if he has half your strength {which he CLEARLY does!} he will make it through this and get back on track again. I am praying for you all, and please don't hesitate to call me ANYTIME you need/want to! I want to help any way I can. LOVE YOU!
Oh wow. I hope he gets to come home soon and things settle down for you guys. I can't imagine what you guys have gone and are going through. You just keep doing the great job that you are momma and keep those nurses in line. ((hugs))
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